A beautiful butterfly, Sayuri

An article by Tanvi Fadnis

Sayuri Ram, a 3-year-old little girl from Kolkata, India, is diagnosed and fighting against a rare genetic skin disease called Epidermolysis Bullosa (EB). EB is a skin disease that causes thsayurie skin to blister and peel. These blisters form at the slightest touch and may appear in response to minor injury, heat or friction from rubbing, scratching, or adhesive tape.

EB is caused due to lack of certain proteins which hold the different layers of skin together. Depending upon which type of protein is missing, there are various forms of EB. Its severity can range from mild to lethal. Because of the blisters, the skin tears off and wounds are more prone to infections.

There is currently no cure for this condition. Management involves wound care, pain control, controlling infections, nutritional support, and prevention and treatment of complications. Many researchers are working across the globe…

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